Everyone knows where they were in 2001 when the planes flew into the twin towers.
I was in Sydney, Australia, sitting across the desk from an urologist who was telling me I had advanced prostate cancer. We were both bleary eyed as like the rest of the world, we had been glued to the TV screen for hours in disbelief.
My urologist was telling me because the cancer was not contained to the prostate, and because my PSA was 67 (above 4 is abnormal) and with a Gleeson score of 4 + 4 (8), my chances of surviving more than 5 years even with the best treatment was slim. He calculated about 18%. The chance of me surviving to 10 years was something like 5%.
Those who have read some of this site know that I have been dealing with advanced prostate cancer for a long time, 19 years in fact! (see this post My Cancer Story Summarized).
My prostate cancer is termed ‘advanced’ because from when I was diagnosed it was outside the prostate capsule, therefore it had metastasized somewhere else in the body.
For quite a few years now I have been on X-Tandi (Enzalutamide), but 8 months ago the prostate cancer biomarker, the PSA blood test, began to rise again. This meant that the cancer was again growing somewhere in my body.
I’ve been meaning to post about this for some time now in the hope it is of use to someone suffering from Irritable Bowel Syndrome (IBS).
Up to 12 months ago I had constant diarrhea for 2 years. It started after a particularly hot chilli Indian meal, that I knew at the time I shouldn’t have eaten, however I felt obliged as I was a guest at the meal. The next day was excruciating and no mater what I did over the following weeks the diarrhea continued. I had many tests including 3 different stool tests checking for bad bacteria, a colonoscopy and a gastroscopy (sometimes called an upper gastrointestinal endoscopy) and of course blood tests. Apart from a slightly inflammation of the bowel nothing showed up as a cause.
After 2 years of this, I was thinking it was something I was going to have to live with the rest of my (probably shortened) life.
About 12 months ago I got a throat infection and was prescribed a course of the antibiotic Amoxicillin. My diarrhea immediately stopped. But when I finished the two-week course of the drug the diarrhea came back.
I googled antibiotics and IBS and sure enough there were a few references by sufferers who’d had the same experience, not with Amoxicillin but some other antibiotics, the main one being Rifaximin (Xifaxan). Neomycin, Clarithromycin (Biaxin) and Metronodazole (Flagyl) were also mentioned. As soon as the 2 week course of the antibiotic was stopped the diarrhea returned. One did say that they were cured after two months on antibiotics.
(This post is my personal view and does not necessarily reflect the position of any organization or group).
In 1976 when I was 26 years old, I said to my younger wife “Do you know in the year 2000 I’ll be 50 years old!” We both burst into laughter. 2000 was so far away! Now it is 2020 and my body is 70 years old and it’s not so funny anymore. The years have gone by in a heartbeat.
As I get older, and because I’m suffering from a terminal disease, I realize my body, and my mind, are never going to get any better than where they are today. Not only have I all the usual onsets of the body deteriorating with its’ aches and pains, but I also have the side effects of taking 6 different drugs daily to keep cancer and other body ailments in check.
So, realizing my body and mind will only worsen from this day onward, I can see why people in my position may contemplate ending their lives. But this is not a solution to the suffering of the body. It is an option that will only cause more suffering to others and the person who kills his own body. Why?
A question for Weymann fans; I am hoping a Weymann descendant, or someone can help with this please.
Buying an old guitar for about $100 some years ago started me on a journey to discover more about Weymann guitars. It’s been difficult at times to ferret out information about this maker whose manufacturing arm ceased almost 90 years ago.
Most difficult has been finding an image of H.W. (Harry) Weymann – (1866-1930).
Initially all I could find were these likenesses in the 1922 Philadelphia Inquirer:
I’ve been feeling run down lately (it’s now been 2 years on Enzalutamide) and I decided to take the self imposed pressure off from posting for a few weeks and just chill. Hopefully this will give me time to think about how to complete some of the many half finished posts I have been working on.
Every living being, and every person, has seated next to us, seated next to us in our heart, the Paramatma, an expansion of God, Krishna. It doesn’t matter how sinful I am, how low a life form my body is, the Lord’s there beside me. I am not alone. We are never alone.
I’ve mentioned before that with a serious disease I think we need to become active in the treatment of that disease. This is because not all doctors are created equal.
There are doctors that graduate at the top of the class and those that graduate at the bottom. And then there are those doctors no matter how smart they are scholastically will never make a good doctor.