A blog about cancer, spirituality, death, and guitars
This is where you can put a description of the category
(Click to enlarge cartoon)
I may joke about going to see my oncologist, thinking, if I do not look my best, he will give me less attention, but it is just that, a joke.
I have the greatest respect for all the oncologists I have consulted. To me they seem very dedicated to finding the best solutions for their patients.
I’ve been feeling run down lately (it’s now been 2 years on Enzalutamide) and I decided to take the self imposed pressure off from posting for a few weeks and just chill. Hopefully this will give me time to think about how to complete some of the many half finished posts I have been working on.
See you soon!
Charles Robinson/Chaitanya das
Every living being, and every person, has seated next to us, seated next to us in our heart, the Paramatma, an expansion of God, Krishna. It doesn’t matter how sinful I am, how low a life form my body is, the Lord’s there beside me. I am not alone. We are never alone.
Because we are in this human form, and we reside in this body in the area of the heart, we often refer to the Paramatma as the ‘Lord in the heart’, sitting next to us.
Continue reading “The LORD in my HEART, a guitar and a knife – a true story!”
A Layman’s Guide to Choosing a Doctor
I’ve mentioned before that with a serious disease I think we need to become active in the treatment of that disease. This is because not all doctors are created equal.
There are doctors that graduate at the top of the class and those that graduate at the bottom. And then there are those doctors no matter how smart they are scholastically will never make a good doctor.
ALBERT EINSTEIN 1879-1955
Physicist, Musician, Thinker…and founding member and president of The Fluffy Slipper Appreciation Club!
My religion consists of a humble admiration of the illimitable superior spirit who reveals himself in the slight details we are able to perceive with our frail and feeble mind.” Albert Einstein
I had a revelation the other day……….
Well I have now been on Enzalutamide (Xtandi) for 18 months and while it is still very effective in repressing the cancer (my PSA is still >0.01 ng/ml) the side effects appear to be accumulative for me. Continue reading “ENZALUTAMIDE (XTANDI) – Part 2 (Rethink)”
Prostate Cancer is cancer of that walnut sized gland that is part of the male reproductive system. It is located beneath the urinary bladder and in front of the rectum.
So what’s the bottom line (excuse the pun)? Ask your doctor for an annual PSA test from the age of 45, and don’t let him or her talk you out of it”.
Continue reading “ADVANCED PROSTATE CANCER (and how to prevent getting it!)”
Everyone knows where they were in 2001 when the planes flew into the twin towers.
I was in Sydney, Australia, sitting across the desk from an urologist who was telling me I had advanced prostate cancer. We were both bleary eyed as like the rest of the world, we had been glued to the TV screen for hours in disbelief.
My urologist was telling me because the cancer was not contained to the prostate, and because my PSA was 67 (above 4 is abnormal) and with a Gleeson score of 4 + 4 (8), my chances of surviving more than 5 years even with the best treatment was slim. He calculated about 18%. The chance of me surviving to 10 years was something like 5%.
Continue reading “ADVANCED PROSTATE CANCER – Lightning Strikes!”
So in 2001 I did a general health test, and as I was 50 years old I thought I should also get a prostate cancer test, which is a simple blood test, called a PSA test.
After that diagnosis I was really unsure of what treatment to do. This was because I saw 4 different urologists for treatment suggestions and they all gave me different options. One even wanted to do an orchiectomy, the other word for that is castration! He explained to me that prostate cancer is testosterone fed and castration eliminated the majority of the production of testosterone. When I asked him why I would do that instead of taking drugs that did the same thing, AND it was reversible, he said that it was cheaper on the government to do an orchiectomy rather than subsidize the drugs!
I made a mental note….NEVER let this guy give me anesthetic!
So when I had chemotherapy pretty much all my hair fell out, including my beard which I’d had for 30+ years. Now I’ve finished chemotherapy (Taxotere) and started another drug, Enzalutamide, my hair is growing like crazy! I’m thinking I look like Einstein, but of course one of my kids says “Einstein, yeah right Dad, more like one of the 3 Stooges!” (Do people still remember them?)
